Introducing Emily: Local Woman Seeks Help for Her Daughter


“All gone,” Emily Sells says covering her eyes in the video above. Her little brother, Hunter, giggles with delight.  “All gone,” she repeats leaning in; her thinning hair hinting at problems with her health.

Emily struggles just to live. There is the distinct possibility that someday soon she may be “all gone.”

The doctors say that Emily has a severe case of infantile Crohn’s Disease. Her mother, Monique Parker, originally from Humboldt County but now living in Redwood City to be closer to her daughter’s medical care, simply says Emily has ulcers inside her intestines. “The ulcers bleed and it makes it so her body won’t absorb nutrients,” Parker explained in an interview this weekend.

In many ways Emily’s an ordinary six-year-old girl. She likes splashing in puddles

and dancing.

She helps her mom with her little brother. She feeds him

and pushes him in a swing.

em school

Emily at school.

She goes to school when she can.

But she’s had more medical procedures in her six short years than the rest of us will ever have. At 6 months old, her mother says that she was medevacked to a Bay Area hospital with symptoms that the doctors couldn’t explain. For months, medical professionals searched for a diagnosis.

“She was taken completely off of food between eight months and a year,” Parker said. “The doctors let me introduce food again when she was about a year. But she didn’t really want to eat.”

em feed

Emily holding her gtube.

Now Emily is fed through her gtube. The formula, her mother says, goes through the walls of her stomach and “releases food right into her belly.”

She received a stem cell transplant in July of 2013. (One of the first such stem cell transplants, explained her mother.) She was in the hospital for almost six months at this time. She began to improve but, in October of 2014, her mother says, “her disease made an appearance again and to this day she suffers with discomfort, taking daily meds, getting weekly blood draws, having monthly infusions and not having a childhood that most kids have.”

“Emily has undergone more procedures and been through more pain than any adult I know,” says her mother. “She receives beads for every doctor’s visit and procedure; her bead strand is over 5 feet tall!”

em5

Emily smiling even when she is sick in bed.

Now, Parker says, the doctors are running out of options. “We’re almost at a stand still.” Parker is hoping for some kind of miracle. “I’m looking for anything from natural to regular medicine.” She is also looking for support. “I’m looking for anybody out there that has heard of or going through the same thing,” she said.

Most of all she wants support for Emily.  “I want some kind of recognition for everything she goes through every day.”

Parker has a several suggestions for those who would like to help:

    • Join Emily’s Facebook page. (Click here and then add.)
    • Look at her pictures and read about her.
    • Post get well wishes and videos. “She likes to watch them,” Parker explains.
em2

Emily and her mom.

      • Donate to Emily’s Gofundme.
      • Most of all, Emily would like friends. “Please help my daughter meet kids like her or completely different but amazing-hearted and loving,” says Monique Parker.

Emily is living in Palo Alto now to be near her doctors. Eventually, Parker says, they hope to come back to the North Coast. “I was born and raised in Humboldt,” says Parker. “Until [Emily] was three, she lived in Humboldt. That is where all our friends and family are. Eventually, we’d like to move back there but for now this is all we can do.”

Parker is living with the knowledge that someday Emily may be “all gone.” For now, she’s hoping to make her daughter’s life as joyous as possible. Maybe…just maybe, someone will find a cure.

“Please help me get Emily’s story out,” asked Parker when she wrote to us. “My little fighter deserves more!!!”

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26 Comments
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Liz
Guest
Liz
8 years ago

Healing wishes for Emily.

Monique
Guest
Monique
8 years ago
Reply to  Liz

Thank you Liz!!!

Anna McGaughey
Guest
Anna McGaughey
8 years ago

Thinking of you every day! Praying they find answers! Xoxo

Mara Goodner
Guest
Mara Goodner
8 years ago

We love you so much! We’re always saying Prayers for sweet Emily!

Debbie Connors
Guest
Debbie Connors
8 years ago

Emily we love you very much
I think of you all the time. Hugs and kisses little Angel.

jessica sandford
Guest
jessica sandford
8 years ago

Sending love Em you can come play with Lauren anytime you visit! 🙂

Eastside
Guest
Eastside
8 years ago

I suggest calling a man named John Thomas. He is very knowledgable in gut issues. He’s in Washington State but consults for free over the phone. This guy knows his stuff. His phone # is 509- 465- 4154. Sending healing thoughts to Emily.

Monique
Guest
Monique
8 years ago
Reply to  Eastside

Thank you so much!!!

BT
Guest
BT
8 years ago

Will certainly send Good Thoughts to Emily. Be Well Hon.

nines
Guest
8 years ago

HAVE THEY TRIED A FECAL TRANSPLANT?

http://www.seattlechildrens.org/healthcare-professionals/aar/2013/best-of/cures-for-crohns-ibd/

Every day I see more articles about the miracles this produces for people. It might be that the biggest marker for a healthy human is healthy gut biota AND THIS CAN BE FIXED QUICKLY AND EASILY.

Jamie
Guest
Jamie
8 years ago

When I seen that little girl she was amazing, smart and polite. God has blessed you with a wonderful child.

Monique
Guest
Monique
8 years ago
Reply to  Jamie

☺️

Lisa Morrison
Guest
Lisa Morrison
8 years ago

Hey girls, I am sending my love and prayers to all of you. I hope they find a cure soon. She is getting so big, Take care honey, you are a very strong women.

Monique
Guest
Monique
8 years ago
Reply to  Lisa Morrison

Thank you so much Lisa!!!

Brandon Sells
Guest
Brandon Sells
8 years ago

Emily your such a beautiful little girl. I am so pleased to say that’s my niece. I wish I have got to know you better 🙁 I follow your page and you are in my thoughts. We pray for you little princess. Love You.

Monique
Guest
Monique
8 years ago
Reply to  Brandon Sells

Thank you Brandon!!!!

Jeffery Lawrence Lee
Guest
Jeffery Lawrence Lee
8 years ago

Emily, I would love to meet you and play the guitar for you. You are so beautiful and have a sweet smile.

Monique
Guest
Monique
8 years ago

Oh I’m sure she would love that!!

Janet
Guest
Janet
8 years ago

I wish you good luck and I hope you look into fecal transplants, if you haven’t. They’ve been miraculous.

Monique
Guest
Monique
8 years ago
Reply to  Janet

Will do, I have a lot of reading to do ☺️ Thank you!!

Tory Schanzle
Guest
8 years ago

Just a thought, have they considered essential oils? Check out Young living essential oils . EOs have changed many lives.
My dist.# 1594130 .

Monique
Guest
Monique
8 years ago
Reply to  Tory Schanzle

I haven’t heard of it, great idea!! Will do some research ☺️

Elaine dwyer
Guest
Elaine dwyer
8 years ago

Hey, Little Precious. Every day I think about you & your family. I always look forward to all the pics your mommy posts. They bring such joy to me. You are one tough little girl to have gone through so much, never giving up. Always know how very special you are &how much you are loved. A LOT…..
Sending you Big ((((HUGS)))) & Much Love….❌⭕️❤️

Nora
Guest
Nora
6 years ago

Sorry u are going through this!!! Im going through it as an adult but no where as sever as your poor baby!! I was diagnosed 4 years ago with what they claim as the early stages… and Humboldt county doctors are clueless ..but I’m able to control it myself most days through a special diet to help prevent the massive ulcers from getting worse or it helps my body with healing them itself sometimes.. horrible constant pain and multiple surgeries to remove massive polyps and procedures to heal ulcers the size of a baseball which get worse from my gallbladder having to be removed !!! On top of raising 3 kids mostly alone… If I could I would help…but I as a mommy I can be here to give you emotional support or someone from home to talk to if u like! With u and grandma at her side…I’m confident you will have many years with that smiley cutie! Always be positive and always think she will be there with u and her baby brother and good things will come😉😉😉 trust me! I see bright skies ahead…no dark clouds

Ashley
Guest
Ashley
6 years ago

Emily we love you and miss you

Janet
Guest
Janet
6 years ago

My prayers are with you all. I just came to learn about this video series on the connection between our thoughts and our health. There’s also a free book to download where she discusses each disease, possible causes and how to deal with them. The presenter is a doctor from Zimbabwe. First of all, do not fear, but instead look to our Heavenly Father who has put us together and knows all things and who can (and does!) heal from our hearts on out. https://www.youtube.com/watch?v=C20yXJ6rAto